Dementia makes it difficult to say a proper farewell

How do you say goodbye when you can’t say goodbye?

By Mark Harvey

How do you say goodbye when you can’t say goodbye?

I don’t know.

I’ll explain.

I have a buddy … well, actually, that understates it: She’s a close personal friend. She’s been an Elder for as long as I’ve known her, which isn’t really all that long, but it was one of those relationships in which two people just “find” each other — immediately.

It blossomed into a genuine friendship quickly. We’d talk and laugh and cackle over coffee. Tell stories, tease and roll our eyes. Say things that we probably shouldn’t have said and tell secrets that we probably shouldn’t have told. But we always instinctively knew when it was time to be serious, because something was sincere.

We shared things that were true; sometimes, truer than we knew.

We were friends. We still are. But, awhile back, she started heading down Dementia Road — probably Alzheimer’s.

It began as these things begin: slowly, insidiously. Rather like the waves beat on a beach: It’s so gradual that it’s almost imperceptible, which makes it easy to ignore or deny. Until you’re away for a while, then come back and realize: Wow…

Little pieces were gone, going. Little pieces. Less than there was, but it all looks the same. As inevitable as erosion, because it’s human erosion. And you just can’t deny it anymore.

Way too many of us know exactly what I mean.

Now, she’s gone — yet she’s still here. Eroding.

So, you do the best you can. You keep on being who you’ve always been, the way you’ve always been. You don’t correct or argue or object to repeating yourself, and you grab every little moment of presence — those little attacks of clarity in which she is herself — with amazement, gratitude and a secret slice of hope.

But, no. It really is what it is, and it makes your stomach hurt.

Going, going … gone. Yet she’s still here.

Hard-core hospice people — magical folks who spend their time working with and for people who are dying — have a lot to teach us about death, if we listen. One of the things they have to teach us is about saying goodbye. That goodbye can be for the dying person, but it’s also a lot about the fact that we need to say goodbye. It’s known in some circles, I suppose, as “closure.”

I’ve seen that. I’ve lived that. I believe that.

So, I know what I need to do: say goodbye to this wonderful friend. And how the hell am I going to do that?

Sometimes she knows me, sometimes she doesn’t; but, regardless, I seem to be someone she likes. So what, exactly, do we do? Shall I go see her and blurt out a tearful goodbye? What’s that going to do — upset her? Frighten her?

Shall I go on and on about all the things we’ve done, how much fun we had? What’s that going to do?

Shall I tell her how much I will miss her, or how much I already miss her? What’s that going to do?

Right: That doesn’t sound like love or friendship to me. So here’s what I guess I’ll do: nothing. Because I don’t know what else to do.

I’ll just have to live with that little hole in my heart where “goodbye” ought to be, and say what I need to say to … the universe? God? Whomever might be listening.

And I’ll whisper “Vaya con Dios” under my breath, when I need to.

It’s the best I can do, because it’s all I know to do.

How do you say goodbye when you can’t say goodbye?

I still don’t know.

Mark Harvey is the director of information and assistance for the Olympic Area Agency on Aging. He can be reached by email at harvemb@dshs.wa.gov; by phone at 360-532-0520 in Aberdeen, 360-942-2177 in Raymond, or 360-642-3634; or through Facebook at Olympic Area Agency on Aging-Information & Assistance.